Understanding Dyslexia: An Interview with Neil Johnston

Dyslexia is a prevalent learning difference that affects 80-90% of individuals with learning challenges. Often genetic, it can run through generations, yet it is frequently misdiagnosed and misunderstood. We spoke with Neil Johnston, CEO for the Centre for Dyslexia, about exciting new developments aimed at supporting the dyslexic community.

In British Columbia and across Canada, students with dyslexia will benefit from the establishment of a pioneering Centre for Dyslexia. This Centre is designed to provide essential support for dyslexic learners, their families, and educators.

Children with dyslexia often face challenges not just in reading and writing, but also in math, self-regulation and  organization (executive function skills). Research suggests that one in five children in any classroom may be affected, with many potentially slipping through the cracks due to undiagnosed conditions.

Neil explains, “The brain of a child with dyslexia is wired differently, processing information in unique ways. This necessitates specialized interventions to ensure they can embark on their learning journey successfully.”

Neil shares a personal story: “Our family has two kids with dyslexia, and our daughter was struggling significantly in school. Despite asking the right questions and consulting various professionals, we received no indication she had dyslexia. Many families experience this frustrating process, knowing something is wrong but lacking clarity. This contributes to the alarming statistic that 80% of people with dyslexia go undiagnosed.”

A significant hurdle in identifying dyslexia is the formal diagnosis, which often requires costly assessments by psychologists.

Identifying Dyslexia

Carlie: “Aside from psychoeducational assessments, which involve long waitlists and high costs, what alternatives exist for screening?”

Neil: “The right to read has been recognized as a human right in British Columbia, but there are so many barriers and inequities, including waiting lists and associated costs for  a diagnosis. Every child deserves to be screened for dyslexia. Our Centre offers quick screening processes. For example, families can visit us for a 30-minute screening session, which includes both paper and online tests at no charge.”

The Centre’s team will conduct assessments to identify whether a child is at risk for reading failure or dyslexia. Following this, families are guided through their options for support. Neil highlights recent government action, noting, “In February, the government of BC announced a $30 million boost specifically for dyslexia initiatives. This funding focuses on screening and ensuring children receive the appropriate classroom interventions in the public system—a significant step forward, especially since not all provinces in Canada have made similar commitments.”

As the Centre begins to make an impact, Neil emphasizes the need for continued growth. “We aim to ensure equitable education for all students, and this is just the beginning.”

When discussing the importance of individualized support, he remarks, “No two children with dyslexia are the same, and they each have unique journeys. That’s where skilled educators play a crucial role in tailoring strategies that will work for each child.”

Neil acknowledges the value of psychoeducational assessments for deeper insights into a child’s learning profile, while also noting that screening can serve as an initial step to identify potential issues.

Screening Availability

Carlie: “How can parents access screening through the Centre?”

Neil: “We currently offer three intakes a year, with the first one just launched. Parents can find more information on our website.” The next begins on November 14th with an online parent workshop and November 15th in-person for children in pre-Kindergarten, Kindergarten, Grade one and Grade two.

Although the Centre’s state-of-the-art facility is still in development, it will be located at 2294 West 10th Avenue (Vancouver), with plans to create an environment tailored specifically for dyslexic learners. Neil explains, “We envision a world-class educational setting that addresses the unique needs of dyslexic students.”

He also highlights the training efforts aimed at educators: “We’ve trained over 1,300 teachers from BC, Canada, and beyond in effective interventions for dyslexia. Many public school teachers participate in our programs, and we are actively scaling our efforts.”

Carlie: “Will you have satellite locations to reach more areas in BC?”

Neil: “Some programs will be available online, ensuring access regardless of geography. While screening is currently conducted in person, we offer various after-school  learner and educator programs that can be attended online or in person.”

Neil concludes on an optimistic note: “Dyslexia is often accompanied by strengths in complex problem-solving, creativity, and communication. Interestingly, studies suggest that around 40% of entrepreneurs may have dyslexia. As awareness grows, we not only need to address the challenges but also celebrate the potential of dyslexic individuals. The World Economic Forum has highlighted that the skills associated with dyslexia align with workforce needs today and for the future, emphasizing the importance of supporting these learners to thrive in education and life.”